I promise not to write each time Zander goes in to get an infusion (if you didn't read two posts ago, do, then this will make sense) but this one came with a real pretty shiner. Zander was up and around and he was crawling into the bottom of one of our bar stools (which are normally up on the counter--kind of looks like a restaurant that is closed for the night) and he fell....hitting his left eye. The poor left side of his face can't catch a break.It didn't look that bad (this happened Monday night) we iced it and on Tuesday it had a bruise and then this morning it was starting to swell shut. Up to the center we went to get his second infusion and his eye was so bad they decided to keep his IV in and we will give him his third dose of factor tomorrow.
You read that correctly, we will give him his factor (into the line in his hand) and then pull the IV out. I have already flushed the line once (to make sure it doesn't get clots) and will do that one more time tonight. Then in the morning I will mix his factor and give it to him. I feel like a real grown up!
I would be a liar if I said it didn't make me nervous...because it does. But, the nice thing is the line is already in his vein and as long as he doesn't pull it out tonight we will be set for tomorrow. Here are some pictures of his eye and one of his arm (all bandaged up to hopefully keep him from pulling it out.) Wish us luck!
(coming soon a fun filled hemophilia blog: thebloodygoodlife.blogspot.com)
13 comments:
Oh, that eye made me cry. Good luck tomorrow.
Sweet little man! Good luck with everything and know we love you all! :-)
Ow! Poor kid. You are both so brave. Puts my stuff into perspective.
I love this little man and I promise never to punch him in the eye!!! This will be a memory in a few days and look at what you have learned. Love you all.
Oh sad! The poor little guy. Keep up the good work Mommy!
Poor little guy! Love the huge grin though- what a trooper. You guys too. You are beyond a grown up on this one,what a lucky boy to have such awesome parents!!!
I can't believe how much you have going on! Poor Z. Hopefully everything goes well! I'm praying for you :)
Just a little update...we did it! No problems (my sister Awny did walk me through mixing his factor)he did great.
It's so sad, but I can't believe how happy he looks. Big huge grin on his face with a big black eye. You sound like you're handling it so well.
Poor little stinker. I wish I could put a big pillow around him until he gets a little more stable on his feet and understands his condition a little more. Love him and you all a bunch. Give him "gentle" hugs for me, and have Ayda sing to him.
Sorry Z had to have another treatment, but kudos to you, Dr. Doogie for pulling off your first infusion!!
You are SUCH A BRAVE TOASTER!!!! Poor little guy... those darn bruises! WE LOVE YOU!
Oh Nika, you are sooooo brave! I love that you started that other blog and can't wait to hear more from you and your fam on it!
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