Part of the reason I always wanted girls was so I didn't have to worry about hemophilia. When I found out Z was a boy, I knew in my heart he had it so when we got the tests back I felt like I had known for months. Thankfully, Zander hasn't had any problems up to this point, I mean he is bruised, but bruises happen to other kids. He is so active that his bruising comes as little surprise to me.
But on Friday he hit his head at my sister's house, I called his hematologist and they said he would probably be okay. Then on Saturday he stopped using one of his knees to crawl, it was like it was hurting him (this lasted until today). Again, this isn't exclusive to hemophilia, knees can hurt when you spend the day crawling around. Then last night, after Z's bath I was drying him off and lotioning him up and I felt a lump on his butt cheek. I didn't see a bruise but I could tell he had something going on. This morning I called up to the HTC (hemophilia treatment center) and the hematologist agreed that because of the combination of issues it would be good to do an infusion (it is putting that clotting agent back into his blood).
So to make a long story short, today was his first infusion, it is a big milestone and I am glad it is over! I have worried about his "first bleed" since the day he was born and I now I guess I can start to worry about the next bleed. It really wasn't that bad. The nurses are fantastic and very understanding that this first time (and times to come) are stressful. Zander wasn't that excited about them poking and touching his butt or his knees, but really he isn't too keen on the idea of strangers. The actual infusion lasted only a couple minutes, the hardest part for me was having to hold my baby down so they could get his IV in, he cried, I cried, we made it through, he got a little teddy bear, I got a pat on the back.
I am very thankful for my family, they are a huge support to Travis and I (more than they know). Each member for a different reason, the Lord blessed me with a family unit that can really help me learn this pathway.
I don't write a lot about my dad but I thought a lot about him today. I thought about how many infusions he had in his life. I thought about how he paved the way to make Zander's hemophilia a lot easier to deal with. The medical advances since my dad was diagnosed are many. Zander has so many more opportunities to keep his body healthy and to live a very very normal life.
Those of you who don't know a lot about hemophilia feel free to ask your questions, no questions are off limits. I am glad today is over, I love my baby, who right now, in a rare moment, is sleeping next to me on my bed.
Here is a picture of Zander's butt bruise (the doctor's agree this was a bad one---we tried to take it in a way so it wasn't exposing all his business.) Also, one of his medical alert bracelet (many who don't know what it is comment on how it is cute I put an anklet on my baby....)